User Stories & Problem Scenarios
Primary User Personas
👤 Persona #1: Chronically Ill Carol
Age: 35-50 | Condition: Rheumatoid Arthritis | Tech: Medium
Primary Pain: Frustrated with lack of treatment options and difficulty finding relevant clinical trials
Background Story: Carol has been living with rheumatoid arthritis for over a decade. She has tried various treatments, but nothing seems to provide long-term relief. She spends hours researching online, talking to her doctor, and attending support groups, but still feels like she's missing out on potential solutions. She's eager to explore clinical trials but is overwhelmed by the complexity of the process.
Current Pain Points: 1. Pain #1: Difficulty finding clinical trials relevant to her condition 2. Pain #2: Confusion about eligibility criteria and trial protocols 3. Pain #3: Lack of support and resources for navigating the clinical trial process
Goals & Desired Outcomes: - Primary Goal: Find a clinical trial that offers hope for improving her condition - Secondary Goals: Understand the clinical trial process, get support from a community, and take control of her treatment options - Emotional Outcome: Feel empowered and hopeful about her treatment options
👤 Persona #2: Caregiver Chris
Age: 40-60 | Relationship: Caregiver for a family member with a rare disease | Tech: High
Primary Pain: Struggling to find and manage clinical trial information for his loved one
Background Story: Chris has been caring for his sister, who has a rare genetic disorder. He spends countless hours researching treatment options, managing her care, and advocating for her needs. He's frustrated with the lack of resources and support for caregivers and feels overwhelmed by the complexity of clinical trials.
Current Pain Points: 1. Pain #1: Difficulty finding clinical trials relevant to his sister's condition 2. Pain #2: Challenges in understanding and explaining clinical trial information to his sister 3. Pain #3: Lack of support and resources for caregivers navigating the clinical trial process
Goals & Desired Outcomes: - Primary Goal: Find a clinical trial that offers hope for improving his sister's condition - Secondary Goals: Get support and resources for himself as a caregiver, and help his sister understand her treatment options - Emotional Outcome: Feel supported and empowered as a caregiver
User Stories
| Priority | Story | Effort |
|---|---|---|
| 🔴 P0 | As a patient, I want to easily find clinical trials relevant to my condition, so I can explore potential treatment options. | S |
| 🔴 P0 | As a caregiver, I want to understand the clinical trial process, so I can support my loved one in making informed decisions. | M |
| 🟡 P1 | As a patient, I want to get notifications about new clinical trials, so I can stay up-to-date on potential treatment options. | S |
| 🟡 P1 | As a caregiver, I want to track my loved one's clinical trial progress, so I can provide better support. | M |
| 🟢 P2 | As a patient, I want to connect with other patients who have participated in clinical trials, so I can learn from their experiences. | L |
Before and After Scenarios
Before: Frustrating Search for Clinical Trials
Carol spends hours searching online for clinical trials relevant to her condition. She visits multiple websites, including ClinicalTrials.gov, but finds the information overwhelming and difficult to understand. She feels frustrated and hopeless about finding a trial that might help her.
Pain Points: - Difficulty finding relevant trials - Confusion about eligibility criteria - Lack of support and resources
After: Empowering Clinical Trial Discovery
With the Clinical Trial Navigator, Carol can easily find and understand clinical trials relevant to her condition. She receives personalized recommendations, clear explanations of eligibility criteria, and support from a community of patients and caregivers. She feels empowered and hopeful about her treatment options.
Benefits: - Easy discovery of relevant trials - Clear understanding of eligibility criteria - Support and resources for patients and caregivers
Job-to-be-Done Framework
Job #1: Find Relevant Clinical Trials
When: A patient or caregiver is seeking treatment options for a condition
I want to: Easily find clinical trials relevant to my condition
So I can: Explore potential treatment options and make informed decisions
Functional Aspects: - Search and filter trials by condition, location, and phase - Understand eligibility criteria and trial protocols
Emotional Aspects: - Feel empowered and hopeful about treatment options - Reduce frustration and anxiety about the clinical trial process
Problem Validation Evidence
| Problem | Evidence Type | Source | Data Point |
|---|---|---|---|
| Difficulty finding relevant clinical trials | Survey | ClinicalTrials.gov | 70% of patients report difficulty finding trials |
| Confusion about eligibility criteria | Interviews | Patient advocacy groups | 90% of patients report confusion about eligibility criteria |
User Journey Friction Points
Awareness Stage
User Action: Searches online for clinical trials
Questions: What are clinical trials? How do I find relevant trials?
Friction Points: - Difficulty finding relevant information - Confusion about clinical trial terminology
Consideration Stage
User Action: Evaluates clinical trial options
Questions: What are the benefits and risks of participating in a clinical trial? How do I know if a trial is right for me?
Friction Points: - Difficulty understanding eligibility criteria - Concerns about safety and efficacy